inchronicpain
Newbie
Registered: July 01, 2010
Posts: 2
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| | July 01, 2010 at 07:40 PM | Reply with quote | #1 |
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i suffer with chronic pain i have a diease called endometriosis and may have Fibromyalgia to does any women here suffer with endometriosis or every heard of it? there is no cure for it yet and no treament that really works for it all they can do is remove it but it does not matter how many times they remove it it always grows back its almost like cancer and its almost just as painful as cancer i just had my 2nd surgery for it a few weeks ago and the pain is already coming back i also have IBS and also something wrong with my back but i can't spell it but my spine is not straught like it should be and it causes chronic pain and may also have Fibromyalgia but the doctor who did my surgery for endometriosis is sending me to a pain management doctor for all the chronic pain i am living with and the endometriosis that i have i will have to live with for the rest of my lifei also have pains in my hips and my legs i get alot of UTI'S to and i get alot of kidney stones I have mild Scoliosis, to but the pain is unbearable right now i go to the pain management doctor on friday when i lay down my hips and my back hurt so bad that i am laying there crying because its so bad i think with the endometriosis it maybe caues me to hurt that bad to i also get really bad headahes i was diagnosied with Sacroilac joint dysfunction a few weeks ago i can't find any pain management doctor here in lexington ky that will treat my chronic pain so i am really suffering i may also have arthritis how ever you spell it |
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summer
Manager
Registered: May 15, 2009
Posts: 292
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| | July 02, 2010 at 06:38 PM | Reply with quote | #2 |
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Hello Dear,
I know all about endometriosis and fibromyalgia. Either one alone is enough pain to have to bear. Combined is like a time bomb waiting to explode. I am so sorry to hear that you are feeling so poorly. I wish we could all meet under more pleasant circumstances. We are happy to welcome you here and I truly appreciate your introduction post! Not many post immediately and it's really nice to get a bit of background on a new member right away. It makes things easier for me to find information that may be useful to you personally. I didn't think of endometriosis when making the categories, even though I suffered with years from it and couldn't have children of my own.
It is an interesting topic that we should probably explore a bit more here and find relevant information to help the numerous sufferers that don't wish to disclose that personal of a condition. I will look into starting a new category which includes it.
The forum is moving very slowly at this time since I recently suffered a heart attack and am able to spend a very minimal amount of time up and around. We are still trying to determine the cause of these and related problems and I am so very tired all the time! With your combined joint and bone problems it seems like you should get better pain treatment. Try the locater HERE and see if you can find a qualified physician or pain clinic within a reasonable driving distance for you. I understand how just going to the doctor creates an uncomfortable situation with your back and hips, I have the same thing if I sit up for an hour or so. It is like the most unbearable pain beyond a toothache, I think. Also, it appears to me (I am not a physician or qualified medical consultant) that there is something going on with a connective tissue issue. It seems like the majority of your problems lie within your joints. Arthritis is a fair assumption but often times we do not get a confirmed diagnosis with that until it is advanced. We can explore other possibilities that will enable you to discuss these issues with your doctor in better detail in hopes of receiving better medical treatment.
Trust me that your posts and letters will be addressed. It may take me a little bit of time to get to them, but I promise, I will.
Please feel free to ask questions and explore the group. In the future, I hope to get all the information and other pages combined into one area but with my limited computer knowledge that may take me some time!
Take care and keep posting!
Love, Summer
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inchronicpain
Newbie
Registered: July 01, 2010
Posts: 2
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| | July 02, 2010 at 08:40 PM | Reply with quote | #3 |
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hey summer its ok i understand if you can't get on here very long |
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summer
Manager
Registered: May 15, 2009
Posts: 292
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| | July 07, 2010 at 12:00 AM | Reply with quote | #4 |
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Hi Dear,
I will upgrade your status from newbie to regular member once you've passed the minimum posts requirement (3). We do that to make sure that we did not get someone in here that is going to wreck our boards with spam. I've seen many people offended in other groups where that happened and we think we'd rather err on the side of caution rather than reckless!
I get on every couple days to check messages, some days are busy and others we have none. I have been getting lazy checking email though so I had to restructure my days to get that and paying bills done. I have been stuck on not really wanting to look at the checkbook since H got fired and only unemployment coming in!
Take care, looking forward to talking again!
Love, Summer
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